Dear Ellie,
For the first week of your life, I was afraid to think very far into your future. But now that you've made it through that first frightful week, I'm faced with uncomfortable questions. I’m beginning to wonder what your life will be like once you’ve grown old enough to talk. And what I will say to comfort you.
For the first week of your life, I was afraid to think very far into your future. But now that you've made it through that first frightful week, I'm faced with uncomfortable questions. I’m beginning to wonder what your life will be like once you’ve grown old enough to talk. And what I will say to comfort you.
Someone born as tiny as you is
certain to face considerable challenges later in life. To use the word “challenges” seems like a
euphemism. You may face things like blindness or
severe seizures or learning disabilities or autism or motor dysfunction or
sensory integration problems or severe anxiety disorder or obsessive compulsive
disorder or gastrointestinal problems or severe acid reflux or chronic pain or
diminished social adaptations or a thousand other types of neuro-developmental impairments or motor problems. If you have none of these problems, you’ll
have won the micro-preemie lottery, but to win that lottery is the exception,
not the rule.
It is tempting to dwell too much
on all of the positive stories about 24 weekers. The “lucky” ones that enjoyed none of these
issues. What matters most to your mother and I, though,
more than our own temporary psychological comfort, is your well being. How can we prepare for all that might come if
we choose only to see one bright color of a broad spectrum of darker possibilities?
The truth is that your life
probably won’t be like the life of other children. By the time you read this, you will surely
know that. In a perverse stroke of
fortune, though, I already know the things that I’m going to tell you. I know, because I’ve been telling them to
myself, for some time. I know what it
feels like to be disappointed. To
compare my life to the lives of others and feel abnormal. To watch others take for granted or throw
away the very thing I’d do anything
for.
You see, the only other thing I wanted
most in life (other than your mother!) was to have a large family. When we learned that this would not be easy--- that it would be very, very expensive--- your mother and I reserved every ounce of our
resources to that end. We never
vacationed. We never bought the
expensive toys of adults: expensive cars and the like. Yet despite our efforts, that family still never
happened. Whatever we did, nothing would
work.
It didn’t hurt to give up all of the things that money could buy. It seemed like
such a tiny sacrifice if we could have you in our arms. In thought experiments, I even determined
what I was willing to barter to have you.
What disabilities I would be willing to put on myself in trade, were I
to come into custody of a sinister genie or a magical monkey’s paw.
All the while, I seethed at every
dead beat dad that I saw. The ones that bemoaned
their parental responsibilities or worse, abandoned their children in exchange
for some fickle perception of freedom. How
could my greatest joy be someone else’s tedious burden? “Give them to me, if it’s such a problem,” I
wanted to say.
And so there has been countless
moments this past decade where I’ve hated others for having the thing that thing which I didn't. I allowed it to sedate every
happy moment in my life.
One day, though, I was talking to
one of my older adult students after class.
The subject eventually shifted away from biology and toward family. He told me about his wife and his five
children. He was a good man and by no
means a bad father but boy, was I jealous of him anyway. But then I started talking about your mother
and I. The common interests that she and I share. The calm way that we resolve
disagreements. Our deep understanding of
one another and the daily affection that we give to one another even after
15 years together. How I can never wait
to share a conversation with her. About
how life with each other was so incredibly easy. While I told these things to my student, he was beaming all the while. “Wow,” he said, eyebrows
perked. “I really wish I had that kind of marriage.”
After he said that, it dawned on
me. All the while that I was jealous of
him, he was jealous of me.
At that moment, I felt better, but in an unexpected way. It was like my impulse to feel sorry for
myself had been stolen away. With my
good fortune, what right did I have to feel sorry for myself?
I understood then that regardless
of how much or how little someone has, everyone believes that they are lacking
something. Everyone envies someone else for what they have. There are billionaires and monarchs who enjoy
great opulence, but are utterly depressed that they don’t live a simpler
life. There are scores of destitute who
wish for quick wealth, but find themselves no happier when they gain it. There are rock stars or actors who achieve the
fame they always yearned for, then die of drug overdoses in an attempt to numb
their new found misery. There are the
obscure who wish for fame and beauty.
And the famous who want ambiguity and privacy. And what is it about all of these radically
different people that leads them to their discontent? Is it their actual circumstances? No, it is what they choose to notice about
their own lives. And what they choose to
ignore.
Yes, I envied others for the
simplicity with which they had children, but I understand now all the things
that other people could envy about me.
They could envy my marriage. They
could envy my gregarious personality or my effortlessly lean build or, yes,
even my childlessness (the very thing for which I was jealous of others!) In obsessing about the things that I lacked,
I had forgotten about the things that I should be loving about myself.
The things that had been there, all along, but I had forgotten.
Maybe you will be blind. Or frail in some way. Or it might be hard for you to think in particular ways. I don’t know what the future will
be for you, but I do know that you’ll possess a thing that makes you
exceptional in some way, and some person whom you envy will wish instead that they had the your unique quality for themselves. They will wish that they were you. So be grateful for that thing, whatever it is, and never forget it.
There will be many, many stubborn
circumstances that you won’t be able to change about your life. However, there is always one thing that you
can always change. How you choose to see them.
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