I was disappointed to come in this morning and find that your oxygen requirements had increased. As your lungs get progressively worse, respiratory support goes up. What baffles me the most is the fact that you are breathing voluntarily, quite a bit. Yet for some reason, those breathes simply aren't very productive. The doctors don't have an answer to the ultimate underlying cause, but the general reason seems pretty obvious: your lungs are damaged or filled with fluid and aren't working like they are supposed to. Seeing you continually move backward in this way is nervous when even standing still would be concerning.
Lung problems during pre-maturity are one of those big risk factors for cognitive and motor disabilities later in life. If your brain cells go undernourished of oxygen for extended periods of time, they can quickly whittle away. Seeing you in this condition has brought my thoughts back to your future. To the kinds of troubles you might, or probably will, face.